Caring for my Alzheimer's Mother no help from Brother or Sister

I've been caring for my mother for 5 years in my home. She has been in hospice for a year and declining but lingering on. It's extremely difficult for many reasons.....financially, emotionally, loss of privacy, loss of half my space, time....etc.

I'm tired all the time, getting physical problems, and my sister and brother have not helped me at all. That hurts my feelings. I am lucky to have a very generous husband who is extremely supportive. I just want it to end. For my mother because I don't want to see her choking and not being able to swallow which is starting to happen.

She has no life now even though she is very comfortable and seems happy. She know she is cared for and has no fear. I will always have that, knowing that for the rest of my life but this is a very lonely, lonely road.

I just want it over and want my life back. I can't even remember what it was like before she came anymore. I am a different person now.

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You will have Your Life Again
by: Anonymous

You are lucky to have such a supportive and caring husband. Your mother is lucky to have you. I can't say the same for your brother or sister who have basically abandoned your mother and you. I know how lonely your life is.

I help my two elderly (88 & 90) parents who, although failing physically, are pretty sharp mentally, thank goodness. However, they share (with home health aides and me) in the care for my brain injured, totally handicapped sister. God bless them. But my three other sisters don't do much to help us.

I know the loneliness that you are talking about. It's been over 5 years since my sister's stroke and our lives revolve around her constant care; my life revolves around the care for her and helping my parents, too.

I know how exhausted you are and just know that some day you will have your life back. Don't expect your siblings to understand or appreciate the sacrifice you have made.

Prayers for You
by: Doug

My prayers are with you and there are many of that understand. I am alone with my mom in the woods of Northern Florida. We travel 40 miles every time we get in the car to do anything. It is stressful and lonely. I take it a day at a time now. I do make plans for myself. I do have a life in the future again and focus on that while caring for mom. My prayers for you.

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