Blessed but Oh soo Stressed!!!
Hi! I just stumbled upon this site & being that I'm once again experiencing turbulence in the unsteady navigation of care giving to my elderly, terminally ill mom I want to share!
First and foremost, I Love my mom dearly! All that she has been to & for me, is what propelled me to leap before looking into this realm of becoming her sole caregiver.
I must say, that if I knew half of what I'm currently experiencing & learning now-I wouldn't have dived headfirst until all resources & options we're entertained!
My mom has Alzheimer's, congestive heart failure & a non operable brain tumor not to mention chronic arthritis, diabetes & a whole other list of underlying conditions!
Now, you have me, a 40 year old female with relapsing-remitting MS, seizure sufferer, arthritis & a lot of little underlying illnesses!
I am a wife, mother of 3-two of which are 12 & 13 and at home, oldest is an adult & on his own. I am a stay at home disabled entrepreneur.
I ventured into this care giving role for my mom, to help ease the burden that was placed upon my eldest sibling that happens to be the P.O.A. & she was residing within the same state as my mom.
I won't say that I was lied to about my mom's needs but, I will say that the info that was given to me was Truly
Misleading! I was basically lead to believe that my mom just needed to be monitored as she couldn't resume regular functions & actions of a person that lives alone & needed assistance with a few things!
I flew my mom to come stay with me full time and live with me & my family so she wouldn't be alone & could get looked after. My mom, I had learned a week after being in my home needs & requires Full Time Nursing!
There is not one thing that she was able to do for herself! As the weeks/months have gone by with her in my care, the little she Was able to do(walk-with cane,stand, toileting, etc.) has gone in the wind Completely!
I have another sibling, that lives 45 minutes from me & vowed to be a "help & support system" in aiding in the care of mom( weekends,breaks, etc.)and has been more of a problem than ever on Everything!
Does not come to relieve me of duties when agreed upon, only when it suits her! Constantly has negative comments & mannerisms, Always can Tell what I Should or Shouldn't be doing in My Home for our mother, etc.!
It's draining enough, doing & being All that I am & dealing(or Not)with my Own health issues & setbacks makes me not Like the very same people that I was brought up with & have loved unconditionally since My origins!